Helping patients, our neighbors and friends
The Leukemia & Lymphoma Society (LLS) provides a comprehensive array of services to patients and their families touched by blood cancers. LLS offers practical and ongoing support through all phases of illness from diagnosis through treatment and survivorship. It also supports patients and family members with end-of-life concerns.
Information Resource Center
The Information Resource Center (IRC) provides the public, health professionals, patients, and their families, accurate, current, disease-related information on blood cancers. IRC information specialists are social workers, nurses and health educators. They are available to speak with callers Monday through Friday, 9 a.m. to 6 p.m. EST. The IRC responds to an average of 80,000 calls per year.
This program was created in 1995 to connect an LLS-trained peer with a newly diagnosed patient, and it has grown to include more than 6,900 peers. Evaluation of this program indicates that the best match is one where the peer most closely resembles the disease and background of the newly diagnosed individual. They connect by telephone or the LLS Web site. As an extension of the existing program, LLS is working to expand its volunteers to include underserved populations in local chapter communities.
These participants become volunteer ambassadors from the community for their community, and they will enable LLS to reach underserved patients more effectively. First Connection Volunteers in underserved communities will help patients and caregivers with similar diagnoses and life circumstances navigate the challenges associated with treatment and survivorship.
LLS Teleconferences & Webcasts
The teleconference programs are well received and well-attended—from 1,000 to 2,500 on a given call. The programs bring key thought leaders to our patients on a single telephone call. All teleconferences are transcripted and audio-archived in an MP3 format, remaining on our Web site for at least one year. Patients, caregivers and oncology professionals hear the latest disease-specific treatment and clinical trial information. Continuing education credits are available for oncology professionals who participate in live or archived programs.
The webcast programs are highly regarded and well attended, with approximately 800-2,500 participants on the program. All Webcasts are archived and remain on our Web site for at least one year. The programs are live both via teleconference and at the venue. The event is filmed and then posted on our Web site for increased participation, with speaker slides, audio and full written transcripts. The programs bring key thought leaders to our patients through web conferencing, where the participants can view the program on their computer. Patients, caregivers and oncology professionals throughout the country gain access to the latest disease-specific treatment and clinical trial information through this cutting-edge interactive medium.
The Co-Pay Assistance Program
This program offers financial assistance to patients in meeting their private insurance or Medicare premium or co-pay obligations for prescription medications. The program provides co-payment assistance for either pharmaceutical products or infusion treatments to financially needy individuals suffering from blood cancers.
Pediatric Initiatives. Patient Services is continuing to target the pediatric population to enhance and augment services. The following are national initiatives under this directive:
Pediatric/Young Adult Oncology Teleconference Series
LLS holds a teleconference series of four programs on pediatric cancer and survivorship. Last year, more than 3,000 participants joined the live calls, with another 12,000 accessing the archived programs on LLS’s Web site. The pediatric/young adult series addresses the diverse and complex issues faced by children, families and educators as they navigate through the demands of complicated treatment protocols and issues surrounding survivorship. All teleconference programs are archived on LLS’s Web site (www.lls.org). Written transcripts and audio replays are available to download for each program.
Online Web Chat program for parents of children with cancer
LLS maintains two online chat programs on survivorship. One focuses on young adult cancer survivors, and the other on sexuality, fertility and intimacy. These chats are similar to a successful online chat program for non-Hodgkin lymphoma patients. The survivorship online chat programs are moderated by a professional hematology oncology social worker.
Health Education Materials – Printed Booklets
LLS produces an array of authoritative booklets, videos and other educational materials about leukemia, lymphoma, Hodgkin’s disease, myeloma and other blood cancers. These materials are provided free to the public and are available in all local chapters. Disease-specific and supportive care education booklets are produced in English and Spanish.
Welcome Back Program
LLS’s Welcome Back Program is designed to meet the information needs of school personnel to facilitate the return to school for children with any type of cancer. Welcome Back is one component of the Trish Greene Back to School Program (other components include Learning and Living with Cancer booklet, pediatric teleconference series, and other materials, videos and printed materials available online).
Chapter Blood Cancer Education Programs
LLS chapters hold Blood Cancer Programs in local chapters following the annual meetings of the American Society of Hematology and the American Society of Clinical Oncology. These events draw upon the local expertise of key healthcare professionals.